As Parents With Allergic Youth…How Do We Relate To Life Experiences We Have Never Experienced?

Tip # 30′s Tips For Parents from Anaphylaxis Canada’s Youth Advisory Panel  at Why Risk It?
Click here for the entire list.

“Ideally we would love to learn more about food allergies by meeting/speaking with older kids with food allergies and not always from our parents.”

I totally agree!

No matter what age you are…nothing feels better than to hear from someone, in or around the same age, tell you something about their life experiences that makes you feel less alone.

In fact, it is one of the main reasons for which I started writing this blog…I wanted to reach out to parents with children living with food allergies because I was living that life…feeling very alone.

As my boys with food allergies move into their teens, the above statement from allergic youth made me stop and think…my life experiences do not involve food allergies or eczema, therefore, how, in my boys’ eyes, can I relate?

I thought back to a few instances where my husband’s friends have discussed their life experiences with eczema and food allergies to my boys…

Growing up…a couple of my husband’s friends experienced severe eczema on parts of their bodies.  Michael had always looked up to them, however, after hearing them discuss their eczema related stories…they achieved a ‘pedestal status’.

I am forever grateful to them for sharing their life experiences with eczema from that time in their lives…it gave hope to Michael that he would someday ‘outgrow’ his eczema like them.

As Michael entered his early teens…that is just what happened.

When Michael was young, another one of my husband’s friends alerted me to his eczema-like reaction when he ate McIntosh apples…I put two and two together and realized that the same thing might be happening to Michael.

After explaining this friend’s experience with Michael, he switched to picking apples with gloves on. Over the years, he has also learned to limit his intake of apples…he, himself, has discovered a link between eating too many apples, oranges and cantelope…his skin becomes inflamed.

This same friend has a fish allergy…yet he loves to fish. In fact, my husband and he just came back from a 4 day fishing trip this past weekend. The fishing was phenomenal! His friend just makes sure he brings his own food to eat and is careful about handling the fish when he has reeled one in.

Learning from the life experiences of my husband’s friends with eczema and food allergies gave my boys role models…best of all, they gave them hope.

I like to think that working towards controlling my asthma through running, continues to encourage the boys to stay active in their lives. Both boys play hockey in the winter, Michael has just joined a gym and Matthew will be joining a swim team for the summer.

Asthma need not be an excuse for an inactive life.

Do your children with food allergies/eczema/asthma have role models to learn from their life experiences?

Are you a role model yourself?

P.S.  Chelsea Vineyard won Miss Teen Ottawa Worldshe is allergic to peanuts. She has chosen anaphylaxis as her platform in the hopes to raise allergy awareness.

“I also want to be a role model for children and show them that they can follow their dreams no matter no matter what life challenge they have.”

Chelsea was interviewed by Why Risk It? Click here for the full interview.

Allergy Friendly Muffins For Our Trip To The Cottage

Homemade allergy friendly muffins are a great snack to bring along to the cottage. Perfect for a quick breakfast or snack…the boys opted for their favourite:

Dairy, Egg, Soy and Peanut/Tree Nut Free Lemon Blueberry Muffins

Dairy, Egg, Soy and Peanut/Tree Nut Free Lemon Blueberry Muffins for the cottage

I baked a batch Friday afternoon to bring with us for our first trip to my brother’s cottage…the boys were pumped!  I made them in the silicone muffins cups to reduce our waste. Click here for the recipe.

I also made a batch of Dairy and Peanut/Tree Nut Free Rice Krispie Squares, baked a batch of Dairy, Egg, Soy and Peanut/Tree Nut Free Chocolate Chip Cookies, baked a couple Dairy, Egg, Soy and Peanut/Tree Nut Free French Sticks and popped a few bags of air popped popcorn spritzed with canola oil and sprinkled with sea salt.

My sister-in-law was in charge of our only dinner on Saturday. I can always count on her for a fabulous allergy friendly meal for everyone to enjoy…chicken kabobs, rice, broccoli and a salad.

The boys enjoyed a beautiful Saturday with their cousins…playing cards, fishing, tubing, and even taking in a swim.

The boys with their cousins after a swim in the lake

Crazy Canuck boys!

The countdown is on…just 8 more days until the boys are officially on summer vacation!

Press Pause…And Enjoy All The Beauty Around You

One of my favourite methods of de-stressing is my run first thing in the morning. Monday and yesterday were no exception…yes, it was raining.

Running in the rain brings out the kid in me. Why avoid the puddles and fret about getting wet…half the fun is the pure joy of throwing worry aside. Besides…there is a warm shower awaiting my arrival at home.

The greens of nature have never looked so green…the air is filled with an earthy aroma mixed with fragrant hues, birds are chirping, bunnies dash about here and there and the few people I see…other runners and dog walkers…acknowledge my presence with a smile and a wave…pleased to see they are not alone in the joy of being out in the rain.

It is the little things in life that bring the most pleasure to me…I hope you take the time to pause…and enjoy all the beauty that is around you today.

Here is one to start you off.

Beautiful Peony from my husband's grandmother's garden

My treasured peony from my husband’s grandmother’s garden is now in bloom.

Enjoy!

P.S. Check out this ‘good feel’ article that ran in the Toronto Star yesterday. Click here.

I am always looking for ‘good news stories’ in the newspaper as my boys complain there is too much reporting of all the ‘bad news stories’.

Well ,’Chalkboard Guy’ was a hit in our house!

“1 Smile could change Everything”…”life’s short break some rules”…”Make (picture of a heart) Not War”…”Let’s Party House Warming Fri 9…”…”Grace Trumps Karma”…”Chalk $5 black-board $20 Making u Smile PRICELESS”…”Read the News or Make the News”…It’s not to late to be a ROCKSTAR”…and…”Need: -Chalk -Wife Soon”.

Imagine, how wonderful it would be to wake up every morning to a new positive message written on a chalkboard and displayed in your neighbours window for all to embrace.

How do you stop and smell the roses in your day? What little treasures have you paused to enjoy this week?

How Do You Handle People Who Don’t Take Food Allergies Seriously?

Tip # 29 for parents of allergic youth from Anaphylaxis Canada’s Youth Advisory Panel. Click here for the entire list.

“Prepare us to handle people who don’t take allergies seriously.  These situations unfortunately happen and are frustrating and difficult to deal with.”

A sad reality…no matter how prepared one is…a lack of compassion from the community can still come as a shock.

In my experience, it’s not just total strangers…friends, acquaintances, even family members can have moments when they ‘just don’t get it’.

When a total stranger or acquaintance makes a comment…I can usually dismiss it as ignorance and gently educate them on food allergies.

However, over the years, I have educated family members and friends about my boys’ food allergies so it does come as a shock when a family member or friend blatantly defies, disregards, and/or challenges us on the boys’ food allergies.  I find I become extremely protective, my guard goes up and my trust in them is challenged.

As disconcerting as it is to be centred you out over food allergies…I try to remember our food allergy lifestyle governs us to be vigilant at all times. Whereas, someone who does not live with food allergies may not fully understand all the complexities that a food allergy lifestyle entails.

A food allergy lifestyle is not a diet…it is a commitment.

A food allergy lifestyle is not a choice…it is necessary way of life.

A food allergy lifestyle is not to be taken as a personal insult…rather, it is a personal prescription that should be respected.

My advice to my boys’ with multiple food allergies when confronted by someone who does not fully comprehend food allergies:

1.  Trust yourselves.
2.  Trust your gut…do not worry about offending someone by not eating what they feel is free of your allergens.
3.  Trust the food allergy community’s research, statistics and educational support is there ready to back you up.
4.  Someone not willing to take your food allergies seriously…is someone not to take too seriously themselves.

How do you handle people who do not take food allergies seriously?

Resources from associations that support those of us living with food allergies:

Anaphylaxis Canada’s Resources
Why Risk It? Resources
Allergy Asthma and Information Association Links

Dairy, Egg, Soy and Peanut/Tree Nut Free Homemade Strawberry Jam Filled Lemon Cornmeal Muffins

Strawberry season is almost upon us here in Southern Ontario…I am sooo looking forward to picking some local strawberries for my annual Strawberry Freezer Jam.

I have a few jars left from last year…the perfect complement for my neighbour and friend Leslie’s Cornmeal Muffin recipe…which I have adapted to be dairy and egg free.

Dairy, Egg, Soy and Peanut/Tree Nut Free Homemade Strawberry Jam Filled Lemon Cornmeal Muffins

A basket full of Dairy, Egg, Soy and Peanut/Tree Nut Free Homemade Strawberry Jam Filled Lemon Cornmeal Muffins

Oh my gosh…these were sooooo good! I popped on over…basket in hand…to share them with Leslie and a few of my neighbours. 

In my opinion, the hint of lemon with the strawberry jam…the best!

Adaptions:

1.  Replaced the 1 cup of milk with 1 cup Natur-a Rice Beverage mixed with 1 tbsp. of freshly squeezed lemon juice…let sit a few minutes.
2.  Replaced the 2 eggs with a one egg substitute: 1/2 tsp baking soda added to dry ingredients and 2 tbsp. water added to the wet ingredients.
3.  Added 1 tbsp. lemon zest to add a ‘hint of sunshine‘…plus I love the combination of lemon and strawberry.

Dairy, Egg, Soy and Peanut/Tree Nut Free Homemade Strawberry Jam Filled Lemon Cornmeal Muffins

Dairy, Egg, Soy and Peanut/Tree Nut Free Homemade Strawberry Jam Filled Lemon Cornmeal Muffins

3/4 cup granulated sugar
1/2 cup canola oil
2 tbsp. water
1 tbsp. lemon zest
1 1/2 cups unbleached all-purpose flour
1 1/2 cups cornmeal
3 tsp baking powder
1/2 tsp baking soda
1/8 tsp kosher salt
1 cup Natur-a Rice Beverage mixed with 1 tbsp. freshly squeezed lemon juice

In a large bowl, mix together the sugar and oil.
Stir in the water and lemon zest.
In another bowl, combine all the dry ingredients.
Alternately, stir in the dry ingredients and then the rice beverage mixture…ending with the dry ingredients.
Fill paper/silicone muffin cups with batter.
Bake 400 F for 20 minutes.
Let cool for 10 minutes before removing from muffin tin to finish cooling on cooling rack.

Dairy, Egg, Soy and Peanut/Tree Nut Free Lemon Cornmeal Muffins are delish as is, however…

A Dairy, Egg, Soy and Peanut/Tree Nut Free Homemade Strawberry Jam Filled Lemon Cornmeal Muffin

…filling them with homemade Strawberry Jam brings them to the next level!

Or split them open and enjoy with a dollop on top!

Enjoying a Eairy, Egg, Soy and Peanut/Tree Nut Free Lemon Cornmeal Muffins with a dollop of homemade strawberry jam

Enjoy!

Tip 1:  For a savory cornmeal muffin…add some crumbled cooked bacon and fresh herbs like thyme, parsley or sage.

Tip 2:  Try baking the batter in a 9 inch square pan at 400 F for 30 minutes to slice and serve at your next picnic.

P.S. Click here to view my post on Dairy, Egg, Soy and Peanut/Tree Nut Free Mini Lemon Blueberry Cornmeal Muffins.

P.P.S. Click here for the post on last year’s strawberry picking at Watson’s Farms, my homemade freezer jam and a couple of recipes for all those strawberries you couldn’t help picking this year…Dairy, Egg, Soy and Peanut/Tree Nut Free Strawberry Bread and Strawberry Bundt Cake.

Are you a Cornmeal Muffin fan?

Participating In The 2013 EpiPen Take Action Event

These runners have seen better days…

A pair of well used runners

…hopefully, they will see me through the 5 km run I am participating in tomorrow.

The 2013 Allergy/Asthma Allergy Association (AAIA) Event of the yearThe EpiPen Take Action Eventraising funds for anaphylaxis research and education.

Over $429, 000 has been raised over the past 8 years from various sources…of which the AAIA has helped the Canadian Allergy, Asthma and Immunology Foundation fund research and patient education.

I have managed to slowly get myself back into running shape after my pinched nerve trauma I experienced back in August 2013.

I am looking forward to gathering with our local allergy community to lace up for this worthy cause…perhaps I will see you there!

P.S. Click here to learn more about AAIA’s cause.

Information display for the Allergy Asthma Information Association

P.P.S. Click here to read about our participation in last years EpiPen Take Action Event.

Update: 

Well, I did it!

Me at the 2013 EpiPen Take Action Event in Whitby

I ran the 5 km in support of anaphylaxis research and education. It was a great morning for a run along Lake Ontario.

A great turn out…plenty of fun for the young…a dunking tank, bouncy castle, face painting and a clown making animals with balloons.

How do you help support anaphylaxis research and education in your community?

 

 

 

How Do You Control Your Allergy Related Anxiety?

Tip # 7 from Anaphylaxis Canada’s Youth Advisory Panel. Click here for the entire list.

“Be careful showing allergy related anxiety around us. We pick up on it and may start to become anxious ourselves”

This one really got me to thinking…

How do we balance our own fears of our children’s food allergies…while at the same time, educating those around our children about the seriousness nature of anaphylaxis without being an alarmist?

When I think back to when my boys were younger and very impressionable…I tried to deliver their medical history in a ‘matter-of-fact’ manner. I discovered this to be the most effective way, due to the fact, that as soon as I would mention Michael’s long list of food allergens (dairy, egg, beef, lamb, fish, shellfish, peanut/tree nuts, sesame, mustard and raspberries), along with his eczema and asthma issues…the reaction on the face of the person receiving the information would be one of complete shock…they would seem completely overwhelmed.

My calm delivery was to meant to offset the reaction so my boys did not feel they were being left in the hands of someone who seemed ‘anxious themselves’.

I often found myself reassuring the recipient of the information that with a few simple measures set in place (no sharing of food, my boys were only to eat food from home, washing hands before eating, and at school, my boys kept the same desk all year which the custodian cleaned daily)…the chance of an anaphylactic reaction could be minimized.

Reviewing the signs and symptoms of anaphylaxis and the administration of an auto-injector and having my boys carry an auto-injector, as well as, having one in the classroom and in the office…relieved some of the anxiety.

Maintaining a sense of calm, assurance and control is not always easy…how do you control your allergy related anxiety around your children with food allergies?

Dairy, Egg, Soy and Peanut/Tree Nut Free Mini Lemon Blueberry Cornmeal Muffins

I enjoyed a beautiful weekend away visiting my mother to celebrate her birthday.

Early Sunday morning I was busy in the kitchen baking mini muffins…

Dairy, Egg, Soy and Peanut/Tree Nut Free Mini Lemon Blueberry Cornmeal Muffins

A basket of Dairy, Egg, Soy and Peanut/Tree Nut Free Lemon Blueberry Cornmeal Muffins

The perfect treat to bring along to my mother’s church for their coffee/tea meet and greet after the service…they loved them!

This recipe comes from my neighbour, Linda…who in turn was given this recipe from a friend. I cut the recipe in half, adapted it to be dairy, soy and egg free and opted to bake mini muffins.

Did you notice the beautiful tea towel the mini muffins are wrapped in?

Patchwork Tea Towel handmade by Carla @ My 1/2 Dozen Daily

Carla @ My 1/2 Dozen Daily sewed it for me.

The ‘Little Red Riding Hood’ pattern was from a Scrap Swap Carla held. As soon as I saw it…I knew I needed her to sew me something with it.

After my husband referred to me as ‘Little Red Riding Hood’…I went delivering my muffins in my basket through the neighbourhood last week…I knew just what Carla could sew for me…a patchwork tea towel for my muffin basket.

Dairy, Egg, Soy and Peanut/Tree Nut Free Lemon Blueberry Cornmeal Muffins

1/2 cup canola oil
2 tbsp. water
1/2 tsp pure vanilla
2 tsp freshly squeezed lemon juice
1 tbsp. lemon zest
3/4 cup granulated sugar
1 1/4 cups unbleached all-purpose flour
1/4 cup cornmeal
1 tsp baking powder
1 tsp baking soda
1/2 cup of a non-dairy beverage such as Natur-a Rice Beverage mixed with 1 tsp freshly squeezed lemon juice
3/4 – 1 cup fresh or frozen blueberries (I used fresh blueberries in this recipe)

In a large bowl, mix the dry ingredients (flour, cornmeal, baking soda, baking powder, sugar and lemon zest) excluding the blueberries.
In a separate bowl, mix the wet ingredients (oil, lemon juice, vanilla and water) excluding the non-dairy beverage.
Add the dry ingredients to the wet ingredients alternating with the non-dairy beverage. (ending with the dry ingredients with the blueberries)
Fill mini muffin tin paper liners with batter.
Tip 1:  I was able to fill a 24 cup mini muffin tin and then baked another 8.
Bake at 350 F for 10 – 15 minutes.
Let cool in muffin tin for 10 minutes before removing to continue cooling on cooling rack.

Enjoying Dairy, Egg, Soy and Peanut/Tree Nut Free Lemon Blueberry Cornmeal Mini Muffins with a cup of tea

Enjoy!

Tip 2:  Wondering what to do with the leftover lemon juice?  I love it stirred into water for a refreshing drink or sprinkled over fresh fruit with a drizzle of local honey.

Spring Has Sprung…Time To Plant The Vegetable Garden

I do believe spring has finally sprung here in Southern Ontario…time to plant the vegetable garden.

Red onions from last years vegetable garden

Check out the red onions we discovered from last year’s garden!

I just love spring…a time of rejuvenation.

I am so looking forward to seeing this Peony blossom with the surrounding yellow and purple Iris.

 Iris and Peony in our garden

This Peony is part of the family…it originated from Andy’s grandmother’s garden.

Over the past couple of years, I have been neglectful of my perennial garden, so the oregano made its way in and took it over.  Luckily, I managed to salvage my Shasta Daisies and Iris making room for a Peony I inherited from a neighbour’s garden.

Tomatoes, cherry tomatoes, leeks, swiss chard, Vidalia onions and zucchini, oh my!

Our vegetable garden

A corner of fresh herbs…parsley, thyme, basil, coriander, chives, garlic chives, and rosemary…now I just need to find some beets.

Our fresh herb garden

I am already envisioning some of our favourite summer dishes with our fresh garden veggies…Michael’s favourite Bruschetta and Bruschetta Pasta with our tomatoes, Fresh Corn Salad with our fresh herbs, leeks, Vidalia onions and zucchini barbecued on the grill and how about some Zucchini Muffins!

Fresh garden vegetables are the bomb! What will you be planting this season?

Happy planting!

Food Allergies And The Classroom: Tips for Parents

My two teenaged boys with multiple food allergies (dairy, egg, beef, lamb, sesame, peanut/tree nuts, fish, shellfish, mustard and raspberries) are both in high school…grades 9 and 11.

Adapting to food allergies in the classroom has been a learning experience for myself and both their primary school and high school.

Patience, team work and tons of communication have been the key ingredients to the success of my boys’ journey thus far.

My focus has always been about building a support team to ensure the safety of my boys within the school. My boys’ support team includes…students, classmates, teachers, secretaries, principals, vice-principals, custodians, supply teachers, and parents.

How does one successfully build a support team for their child with food allergies?

I think Tip #15 for parents with allergic youth by Anaphylaxis Canada’s Youth Advisory Panel makes a good point. It states, ” Make sure the information you give is 100 % accurate and not exaggerated to appear more serious. This information will stay with us for a long time and influence our thoughts and actions.”

I think this not only applies to our children with food allergies but also to anyone that we educate on their behalf.

If you come on too strongly or appear ‘wishy washy’…you risk not being taken seriously. Finding that ‘happy medium’, in my experience, will garner you a better chance of building the team you will need to ensure the safety of your child within their school.

Having worked within the school system, I gained experience dealing with overprotective parents of children with special needs. Ironically, I found myself ‘sitting in the other seat’...my two children with food allergies set them apart from the norm.

As a parent with children with food allergies, I say to myself, “What do I know?…What do I want/need?…What is the bottom line?”

“I know that my boys have life threatening food allergies, I know Sabrina’s Law (in Ontario) has been passed to protect my children with anaphylaxis, I know there is an Individual Student Plan (in Ontario) to fill out to protect students with anaphylaxis, I know I need the support from the school to keep my boys safe…I know I need the school on my team.

“I want to work with the school, I want the school on my team, I want the school backing me, I want the school to take me seriously, I want all teachers, substitute teachers and school staff trained in the signs and symptoms of anaphylaxis and the administration of an auto-injector (EpiPen, Twinject or Allerject)…I want all these things so my children will be safe at school.”

The bottom line:   I want the entire school staff and students to know that if they see one of my boys with food allergies showing any signs and symptoms of anaphylaxis they will all know to get the auto-injector, administer it and call 911.

The following are tips I have used to help me build a support team for a safe environment for my children at their school:

1)  Approach the school with an open mind…a demanding stance will only put the school in a defensive mode.
2)  Be prepared to volunteer your time in the classroom, on field trips or whenever volunteers are required…this is the perfect opportunity to spread food allergy awareness and to meet other parents, students and school staff.
3)  Maintain an approachable nature…be open to questions from parents, students and staff…great opportunity for food allergy awareness.
4)  Understand that not everyone understands anaphylaxis…some comments you may hear should be taken with ‘a grain of salt’…count to ten, then use your discretion to gently educate them.
5)  Offer great sites for information and educational material…Anaphylaxis Canada, Allergy/Asthma Information Association, Medic-AlertAllergic Living Magazine and Why Risk It?  Click here for more resources from Anaphylaxis Canada.
6)  Our children with food allergies are their best advocates…in the words of an allergic youth from Tip #17, “Encourage us to tell others about our allergies, try not to always be the one telling our story.”
7)  Change takes time, patience, and persistence…as trailblazers ourselves, I know only too well the ‘deer in headlights’ look when I mention my eldest son’s list of food allergies. As overwhelming as the situation may be…taking it one step at a time…change will come.

I believe working with schools as a team, giving our children with food allergies the opportunity to advocate on behalf of themselves and supplying as many resources as possible providing food allergy awareness to my boys’ schools has given me the piece of mind that I need to send my boys with multiple food allergies off to school every day. This has been my norm.

Questions:  What are some of your tips for navigating the school system with your child/children’s food allergies? What has worked for you? What are your stories?