My two teenaged boys with multiple food allergies (dairy, egg, beef, lamb, sesame, peanut/tree nuts, fish, shellfish, mustard and raspberries) are both in high school…grades 9 and 11.
Adapting to food allergies in the classroom has been a learning experience for myself and both their primary school and high school.
Patience, team work and tons of communication have been the key ingredients to the success of my boys’ journey thus far.
My focus has always been about building a support team to ensure the safety of my boys within the school. My boys’ support team includes…students, classmates, teachers, secretaries, principals, vice-principals, custodians, supply teachers, and parents.
How does one successfully build a support team for their child with food allergies?
I think Tip #15 for parents with allergic youth by Anaphylaxis Canada’s Youth Advisory Panel makes a good point. It states, ” Make sure the information you give is 100 % accurate and not exaggerated to appear more serious. This information will stay with us for a long time and influence our thoughts and actions.”
I think this not only applies to our children with food allergies but also to anyone that we educate on their behalf.
If you come on too strongly or appear ‘wishy washy’…you risk not being taken seriously. Finding that ‘happy medium’, in my experience, will garner you a better chance of building the team you will need to ensure the safety of your child within their school.
Having worked within the school system, I gained experience dealing with overprotective parents of children with special needs. Ironically, I found myself ‘sitting in the other seat’...my two children with food allergies set them apart from the norm.
As a parent with children with food allergies, I say to myself, “What do I know?…What do I want/need?…What is the bottom line?”
“I know that my boys have life threatening food allergies, I know Sabrina’s Law (in Ontario) has been passed to protect my children with anaphylaxis, I know there is an Individual Student Plan (in Ontario) to fill out to protect students with anaphylaxis, I know I need the support from the school to keep my boys safe…I know I need the school on my team.
“I want to work with the school, I want the school on my team, I want the school backing me, I want the school to take me seriously, I want all teachers, substitute teachers and school staff trained in the signs and symptoms of anaphylaxis and the administration of an auto-injector (EpiPen, Twinject or Allerject)…I want all these things so my children will be safe at school.”
The bottom line: I want the entire school staff and students to know that if they see one of my boys with food allergies showing any signs and symptoms of anaphylaxis they will all know to get the auto-injector, administer it and call 911.
The following are tips I have used to help me build a support team for a safe environment for my children at their school:
1) Approach the school with an open mind…a demanding stance will only put the school in a defensive mode.
2) Be prepared to volunteer your time in the classroom, on field trips or whenever volunteers are required…this is the perfect opportunity to spread food allergy awareness and to meet other parents, students and school staff.
3) Maintain an approachable nature…be open to questions from parents, students and staff…great opportunity for food allergy awareness.
4) Understand that not everyone understands anaphylaxis…some comments you may hear should be taken with ‘a grain of salt’…count to ten, then use your discretion to gently educate them.
5) Offer great sites for information and educational material…Anaphylaxis Canada, Allergy/Asthma Information Association, Medic-Alert, Allergic Living Magazine and Why Risk It? Click here for more resources from Anaphylaxis Canada.
6) Our children with food allergies are their best advocates…in the words of an allergic youth from Tip #17, “Encourage us to tell others about our allergies, try not to always be the one telling our story.”
7) Change takes time, patience, and persistence…as trailblazers ourselves, I know only too well the ‘deer in headlights’ look when I mention my eldest son’s list of food allergies. As overwhelming as the situation may be…taking it one step at a time…change will come.
I believe working with schools as a team, giving our children with food allergies the opportunity to advocate on behalf of themselves and supplying as many resources as possible providing food allergy awareness to my boys’ schools has given me the piece of mind that I need to send my boys with multiple food allergies off to school every day. This has been my norm.
Questions: What are some of your tips for navigating the school system with your child/children’s food allergies? What has worked for you? What are your stories?